Life's moments: Adventures of the trials

Friday, May 10, 2013

Adventures of the trials

There's not much I need to say except watch and enjoy because its all in the video!

Click on the link to watch my youtube video!

http://youtu.be/9f8358rO7n8

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Hi, I am Kianna white and I am currently 16 years old and living in Arizona. Unlike most typical teenage girls I was diagnosed with a RARE genetic disorder called muccopolysaccharidosis(MPSIV) for short! I just like to use the huge word to see how people react! Anyways mps affects pretty much everything like height, bones, respiratory system, and different types of deformities in the body. I would like to think that I am the same as everyone else but the big obvious truth is I'm not I am DIFFERENT! Which is funny, because in a world where everyone is trying to be different, I struggle to be the same... I chose to start this blog because I want to share my journey with whoever decides to reads it. Whether its 1 person or 100 people i want someone to know my story, because even though i am only 16 i have a story to tell.... I am not doing this for the satisfaction of other people or attention for myself but to inspire, influence, and change the lives of someone somewhere someday. I wanted to start this blog so I could voice my opinion and share my thoughts about my life as well as the things going on around me. I believe life is full of moments no matter how good or bad they may be and that they will change you're life in the most amazing way, you will meet the most amazing people, and experience the most amazing things in life. You can read this blog and use it to experience a different life because I have this different perspective on life that I'm not exactly sure how to describe it but being different. My adventure has only just begun and I hope that this blog is not only going to help me express my inner thoughts but also give you a new lease on life through the eyes of me and my little moments. After all “Life gives us brief moments with another...but sometimes in those brief moments we get memories that last a life time...”