Friday, April 26, 2013

The Biomarin Advisory


This past weekend I attended the Biomarin Advisory for the current study I am in! And I've got to say I was a little nervous about going to this meeting but once I got there that feeling quickly went away. Saturday my mom, brother, and aunt Michelle all flew out to San Francisco. Once we got there we immediately changed and went out to sight see and meet up with Tracy to
go to the mirror maze. Which so much fun and super cool, it was only like a 10 minute activity but it was still fun and a it's always awesome seeing Tracy! After that we had to rush back to the Omni Hotel, which was absolutely gorgeous like Titanic beautiful, anyways we had to take a public bus through China town which if you ever have it's definitely experience in itself but it was definitely interesting! When we got back we went and met for registration and a casual meeting at like 5:30-6:45 where we met the people we would be talking with and played an ice breaker game but everyone just ended up mingling in the end but it was nice! After, we went to an Italian dinner with everyone and then we went to bed, in one of the softest bed I've ever slept in!!! Day 2: We all woke up nice and refreshed! Speaking for myself of course! Then got ready in our business casual attire for a long day ahead. The first introduction meeting was about 15 minutes long and then we got to break out into smaller groups split between the teen, the adults, and the parents. So once they got done it was time to really get to business, all the teens went into a separate room and they began to ask us questions like, "what things do you like to do? What's something's about you that you want us to know?" Of course I admitted to my deep love of Justin Bieber, writing, and shopping but what's new?! Next they asked questions about the study like, "have you had any side effects?, what has your experience been while doing the study " and other questions to follow. I was very happy that Dr. Harmatz convinced us to go to this meeting because I met a lot of new friends and got to get my opinions out about how I feel. I met a girl named Sarah who is 15 and loves Harry Potter and really doesn't like Justin Bieber at all... Buts that's okay she's still awesome! I also met a girl named Laurie and she loves Justin Bieber as much as I do, and she was so pretty and super nice!!! I'm so glad we met and I really hope to see you guys again!!!